帕金森病患者和临床医生的自我管理系统 帕金森病护理:一个范围审查
Selina Boege1,2, Madison Milne-Ives1,2, Ananya Ananthakrishnan1
1Translational and Clinical Research Institute, Newcastle University, Newcastle, UK.
Journal of Parkinson's disease
|October 11, 2024
概括
数字自我管理工具改善了帕金森病的护理. 患者反是积极的,但需要对临床医生的可用性和工作流集成进行更多的研究,以提高整体质量.
科学领域:
- 数字健康数字健康
- 帕金森病的管理 帕金森病的管理
- 患者的自我管理.
背景情况:
- 数字自我管理工具,包括移动应用程序和可穿戴设备,为帕金森病提供了增强的个性化护理.
- 将患者和临床医生的反纳入工具评估对于用户赋权和加强患者和临床医生的关系至关重要.
研究的目的:
- 审查帕金森病中数字自我管理系统的现状.
- 详细说明自我管理技术的应用和临床医生在这些系统中的整合.
- 综合临床医生接受和可用性,反映患者参与和临床医生经验.
主要方法:
- 在PRISMA扩展和PICOS框架之后进行范围审查.
- 在主要的科学数据库 (PubMed,CINAHL,Scopus,ACM,IEEE Xplore) 进行系统的文献搜索.
- 从包含的研究中提取的数据进行描述性分析.
主要成果:
- 从15231个检索结果中包括了33项研究;确定了五种技术类型,其中组合技术最常见.
- 教育材料和症状日记是常见的自我管理策略.
- 在11项研究中报告了临床数据,其中6项强调了需要原始数据可用性,可视化和摘要的需要.
结论:
- 自主管理系统受到帕金森病患者的好评.
- 迫切需要进一步研究临床医生可用性和整合到日常医疗工作流程.
- 加强临床医师的整合是改善帕金森病管理中的整体护理质量的关键.
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