关于直肠形的管理的ERN eUROGEN指南第一部分:诊断
Ophelia Aubert1, Willemijn F E Irvine2, Dalia Aminoff3
1Department of Pediatric Surgery, University Medical Center Mannheim, University of Heidelberg, Mannheim, Germany.
概括
欧洲专家制定了管理直肠形 (ARM) 的新指南,重点关注从产前诊断到成年期的综合护理. 这些指导方针涉及复杂的病例,旨在在欧洲范围内标准化治疗.
科学领域:
- 儿科手术 儿科手术
- 泌尿器科 泌尿器科 泌尿器科 泌尿器科
- 遗传学 遗传学 是一个
背景情况:
- 阴道形 (ARM) 是一种罕见的先天性异常,影响门,直肠和生殖泌尿道.
- 由于存在争议,ARM的管理是复杂的.
- 欧洲参考网络eUROGEN启动了ARM管理指南的制定.
研究的目的:
- 制定全面的,欧洲一级的指导方针,用于管理直肠形患者.
- 为了解决ARM患者护理中的复杂性和争议.
- 提供一种标准化的方法,从产前诊断到成年.
主要方法:
- 适应了荷兰的质量标准为ARM作为基础.
- 在Medline,Embase和Cochrane数据库中进行文献搜索.
- 使用ADAPTE方法进行证据整合和15名欧洲专家小组的专家共识.
主要成果:
- 审查了诊断工作 (产前,新生儿) 和对直肠,泌尿生殖和神经系统的随访.
- 调整了13条,通过了7条,并制定了8条新的建议.
- 质量高的证据有限;大多数建议基于回顾性研究或专家意见.
结论:
- 患有ARM的患者需要终身,专业和全面的护理.
- 该指南为ARM儿童提供了整体诊断工作的建议.
- 制定的指导方针适用于整个欧洲,促进标准化护理.
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