没有人独自应对 (NOLA):为开发后诊断干预方案的协议,以支持新诊断患有痴呆症的人
Charlotte R Stoner1, Helen Durgante2, Linda Birt3
1Centre for Chronic Illness and Ageing, Institute for Lifecourse Development, School of Human Sciences, University of Greenwich, London, UK c.r.stoner@gre.ac.uk.
BMJ open
|October 12, 2024
概括
需要新的诊断后干预来支持个人和家庭应对痴呆症诊断. 这项研究将综合证据,探索生活经验,并与痴呆症患者共同开发干预措施.
科学领域:
- 老年学是指老年学的学科.
- 心理学 心理学 心理学
- 公共卫生 公共卫生
背景情况:
- 接受痴呆症诊断会对个人及其支持网络产生重大影响,往往导致情绪困扰.
- 目前,在痴呆症诊断后,缺乏结构化的情感支持.
- 诊断后干预对于帮助人们处理和调整痴呆症至关重要.
研究的目的:
- 综合现有关于痴呆症诊断调整干预措施的证据.
- 了解接受痴呆症诊断和当前支持的经历.
- 确定在国家卫生服务 (NHS) 内实施新的诊断后干预措施的障碍和促进因素.
主要方法:
- 阶段1:两次系统审查,综合相关干预措施的证据.
- 第二阶段:两项定性研究 - - 一项英国范围的实践经验调查和一项当地利益相关者对实施情况的研究.
- 第三阶段:建立一个咨询小组,包括痴呆症患者,照顾者和专业人士,共同发展.
主要成果:
- 来自系统审查的证据综合将为干预设计提供信息.
- 定性数据将揭示痴呆症患者的需求和经验.
- 利益相关者的意见将指导干预的实际实施.
结论:
- 本研究协议概述了一种全面的方法,用于开发一种急需的痴呆症诊断后干预措施.
- 与痴呆症患者及其照顾者共同制作将确保干预措施具有相关性和影响力.
- 调查结果将为政策和实践提供信息,以改善痴呆症患者的健康和福祉.
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