患者对基于电子健康记录的风湿性关节炎结果仪表板的看法:混合方法研究
Catherine Nasrallah1, Cherish Wilson1, Alicia Hamblin1
1Division of Rheumatology, Department of Medicine, University of California, 4150 Clement Street, Mailstop 111R, San Francisco, CA, 94121, USA.
BMC medical informatics and decision making
|October 12, 2024
概括
一个新的RA PRO仪表板改善了类风湿性关节炎 (RA) 患者对护理的理解和参与. 这种工具增强了患者与临床医生的沟通和共享决策,支持治疗到目标的方法.
科学领域:
- 类风湿病学 类风湿病学
- 医疗信息学 医疗信息学
- 以患者为中心的护理
背景情况:
- 类风湿性关节炎 (RA) 的治疗目标方法需要有效的结果措施,但临床整合不一致.
- 一个集成的电子健康记录,面向患者的RA PRO仪表板被开发出来,以显示RA结局,药物和实验室结果.
- 该研究评估了患者在临床访问期间对这种新型仪表板的看法,采用混合方法方法.
研究的目的:
- 评估患者对RA PRO仪表板实施的看法和态度.
- 了解仪表板如何影响患者对 RA 的理解和参与护理.
- 确定在RA管理中使用面向患者的仪表板的潜在好处和局限性.
主要方法:
- 临床医生使用仪表板的RA患者被邀请完成有用性调查.
- 与一小部分患者进行了半结构面试,以探索感知.
- 采访成绩单被主题分析使用演和归纳技术,由健康的生态模型组织.
主要成果:
- 在173名受访者中,79%的受访者希望再次看到仪表板,71%的受访者认为它有助于更好地了解疾病,65%的受访者认为它有助于做出护理决策.
- 患者报告说,仪表板促进了关于RA症状 (76%) 和药物 (72%) 的讨论.
- 采访显示,仪表板是一种有价值的视觉工具,可以增强患者参与度,对结果措施的理解以及对临床医生的信任.
结论:
- 患者报告说,仪表板改善了RA的理解,沟通,共享决策和参与.
- 研究结果支持在RA护理中使用仪表板和数据可视化工具.
- 未来的干预可以使用这些工具来解决数据收集和患者教育方面的挑战.
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