对于妇科,月经和性健康的自闭症意识护理的未满足需求
Richard O de Visser1, Rachel Mosely2, Julie Gamble-Turner2
1Brighton and Sussex Medical School, UK.
Autism : the international journal of research and practice
|October 15, 2024
概括
自闭症成年人因医疗保健专业人员缺乏自闭症意识而面临生殖和性健康 (RSH) 护理的重大未满足需求. 改善培训对于应对感官和沟通挑战至关重要,增强自闭症患者的RSH服务.
科学领域:
- 神经科学是一个神经科学.
- 公共卫生 公共卫生
- 医疗保健的不平等 医疗保健的不平等
背景情况:
- 自闭症谱系障碍 (ASD) 通常会使生殖和性健康 (RSH) 管理复杂化.
- 医疗保健专业人员 (HCP) 经常缺乏提供自闭症意识的RSH护理的培训和信心.
- 自闭症患者报告的未满足医疗保健需求率更高.
研究的目的:
- 调查自闭症成年人在寻求RSH护理时遇到的具体困难和未满足的需求.
- 评估医疗保健人员在多大程度上为RSH提供自闭症意识护理.
- 确定改善自闭症人口RSH医疗保健服务的领域.
主要方法:
- 在线调查包括强制选择项目和自由文本答案,对英国136名自闭症成年人进行了管理.
- 使用标准参数和非参数统计测试分析了定量数据.
- 定性数据经过专题分析,以确定反复出现的主题和经验.
主要成果:
- 受访者表示在讨论RSH问题时感到不舒服,包括月经和更年期.
- 医务人员很少适应自闭症患者的感官需求和沟通偏好.
- 医疗保健工作者对自闭症如何影响RSH的认识存在重大差距.
- 确定了对自闭症意识的RSH护理的广泛未满足需求.
结论:
- 自闭症患者在获得适当的RSH护理方面经历了大量未满足的需求.
- 迫切需要提高医疗保健工作者的技能和信心,以提供自闭症意识的RSH服务.
- 研究结果支持开发有针对性的资源和培训计划,以改善自闭症患者的RSH医疗保健结果.
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