探索护理人员与儿童沟通关于性别发展差异 (DSD) 的经验
Ashlynn Kimball1, Meilan M Rutter2, Grace Kavanaugh3
1Genetic Counseling Program, Department of Medical Sciences, College of Allied Health Professions, University of Nebraska Medical Center, Omaha, NE 68198, USA.
Patient education and counseling
|October 15, 2024
概括
护理人员应该从小就与儿童公开诚实地沟通性别发展差异 (DSD). 通过积极的信息传递和共同的医疗决策来赋予DSD儿童权力,对他们的福祉至关重要.
科学领域:
- 儿科内分泌学 儿科内分泌学
- 遗传学 遗传学 是一个
- 儿童心理学 儿童心理学
背景情况:
- 向儿童传达性别发育差异 (DSD) 对照顾者来说是一个挑战.
- 对家庭有效的DSD信息共享策略缺乏基于证据的指导.
研究的目的:
- 探索护理人员在与孩子沟通 DSD 的经验.
- 为患有DSD的儿童确定最佳的信息共享策略.
主要方法:
- 使用半结构面试进行的定性研究,对15名患有DSD的儿童的照顾者进行了半结构面试.
- 用专题分析来编码和解释采访成绩单.
主要成果:
- 出现了四个主要主题:开放的沟通,早期和持续的信息共享,通过积极的信息和参与照顾来赋予儿童权力,并承认DSD与性别认同之间的联系.
- 护理人员在讨论中强调了诚实和适合年龄的重要性.
- 解决性别失调问题的支持性环境至关重要.
结论:
- 透明,适合发育的沟通对于教育和支持患有DSD的儿童至关重要.
- 医疗保健提供者在支持护理人员和促进获得资源方面发挥着至关重要的作用.
- 有效的沟通策略赋予孩子权力,并促进积极的自信.
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