单身生活:乳房切除术后有色人种女性的故事
Jasmine A Khubchandani1,2,3, Sakinah C Suttiratana4, Rosetta Washington4
1National Clinician Scholars Program, Yale School of Medicine, New Haven, CT, USA. jasminekhubchandani@gmail.com.
Annals of surgical oncology
|October 15, 2024
概括
乳房切除术后居住在平房中的有色人种女性面临着独特的挑战,包括癌症的耻辱和精神,这影响了他们的生活质量. 解决这些多样化的经验对于实现乳腺癌护理中的健康公平至关重要.
科学领域:
- 在瘤学瘤学.
- 社会学 社会学 社会学
- 健康 公平 卫生 公平
背景情况:
- 在乳房切除术后的乳房重建中存在着持续的种族和民族差异.
- 倡导和患者报告的平房生活结果主要集中在白人女性身上.
- 乳腺切除术后平地生活的有色人种妇女的经历是不充分的.
研究的目的:
- 描述有色人种妇女在乳腺癌切除术后平地生活的经历.
- 探索与乳房切除术后有色人种女性相关的文化和社区主题.
- 为了确定影响生活质量的因素,为不同的人口的妇女住在公寓.
主要方法:
- 与社区合作的研究涉及社会人口统计和健康问卷.
- 半结构化的虚拟面试使用跨学科的面试指南.
- 综合 (诱导和演) 基于团队分析的采访采用NVivo.使用转录采访.
主要成果:
- 该队列包括20名女性:60%是黑人,20%是亚洲人,10%是多种族,5%是拉丁裔,5%是白人.
- 确定了关键主题:癌症耻辱,乳腺隐私,支持的共同经验,为了健康的牺牲,精神,家庭角色和社会期望.
- 癌症污名和隐私的交集影响了家族史知识和治疗期间的支持.
结论:
- 乳腺癌的耻辱和精神是平房生活的有色人种妇女生活质量的关键决定因素.
- 这些关键领域经常被遗漏在当前患者报告的结果指标中.
- 确保各种经验的代表性对于促进乳腺癌护理中的健康公平至关重要.
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