自闭症个体过渡到成人的挑战和机遇
Anne M Roux1, Kyle Chvasta1, Kiley J McLean1
1A.J. Drexel Autism Institute, Drexel University, Philadelphia, Pennsylvania.
Pediatrics
|October 16, 2024
概括
自闭症青少年因系统延迟而面临过渡挑战. 研究应该优先考虑自闭症声音,多样化的需求,以及改善成功成年人的支持系统.
科学领域:
- 自闭症谱系障碍研究研究
- 发展心理学 发展心理学
- 卫生社会学 卫生社会学
背景情况:
- 在未来十年,超过120万自闭症青少年将过渡到成年.
- 这种转型的社会生态背景是动态的,需要更新的研究.
- 当前的研究需要反映自闭症年轻成年人,他们的护理伙伴和专业人员的生活经历.
研究的目的:
- 为自闭症青少年过渡到成年期制定最新的研究议程.
- 纳入自闭症年轻成年人,护理伙伴和专业人员的观点.
- 为了解决理解和支持自闭症青年在这个生命阶段的关键差距.
主要方法:
- 进行了9个重点小组,共有59名参与者 (自闭症年轻人,护理伙伴,专业人士).
- 按种族/民族少数群体,LGBTQIA+身份和非说话状态分层的年轻成年人群.
- 采用快速定性调查方法来分析半结构面试数据.
主要成果:
- 过渡的重大障碍包括诊断延迟,过程效率低下和等待列表.
- 护理合作伙伴在协调服务,导航系统和提供支持方面发挥着至关重要的作用.
- 主要研究重点包括自闭症包容,文化考虑,支持交叉身份,导航辅助,服务效率和福利计划问题.
结论:
- 未来的研究必须检查人口层面的系统性能和结果.
- 调查服务提供模式,特别是对于边缘化自闭症群体.
- 专注于改变复杂的服务生态系统,以更好地支持自闭症患者.
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