通过社会支持理论的透视来探索神经病学家和患有多发性硬化症的老年人之间的关系
Mina Stanikić1,2, Felix Gille2,3, Jonas Schlomberg2
1Epidemiology, Biostatistics and Prevention Institute, University of Zurich (UZH), Zurich, Switzerland.
概括
患有多发性硬化症 (pwMS) 的老年人发现神经科医生提供足够的社会支持,特别是信息和情感援助. 关键的改进包括更多的同情心和关于补充医学的信息.
科学领域:
- 神经学 神经学
- 社会科学 社会科学 社会科学
- 老年学是一门学科.
背景情况:
- 关于神经病学家为患有多发性硬化症 (pwMS) 的老年人提供社会支持的研究有限.
- 医疗保健从业人员 (HCP) 被认为是社会支持的重要来源.
研究的目的:
- 探讨老年pwMS (年龄55岁以上) 对于多发性硬化症 (MS) 护理的期望.
- 在神经科医生-pwMS关系中确定社会支持的类型,以及满足/未满足的需求.
主要方法:
- 混合方法方法使用来自瑞士多发性硬化病登记处的调查数据.
- 量化利克尔特尺度评估了MS护理的重要性;开放式问题的定性数据探索了神经科医生支持.
- 使用Cutrona和Suhr框架进行主题分析,编码了社会支持领域.
主要成果:
- 在286名参与者中,84.6%接受了神经治疗.
- 神经科医生的专业知识,可用性和全面的咨询得到了高度评价.
- 信息和情感支持是最普遍的;未满足的需求包括补充医学信息,同情心和理解疲劳症状.
结论:
- 年长的pwMS认为神经科医生是全面支持的充分提供者.
- 神经学家的可用性,信息和情感支持都受到高度重视.
- 需要改进的领域包括关注补充医学和增强的同情心.
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