开发一个工具包,以帮助家长/照顾者管理自闭症儿童的食问题:一个现实主义合成和工具包共同设计的协议
Zoe L Connor1,2, Lou Atkinson3,4, Rachel Bryant-Waugh5,6
1Institute of Health and Neurodevelopment & School of Psychology, Aston University, Birmingham, United Kingdom.
PloS one
|October 16, 2024
概括
这项研究旨在创建一个工具包蓝图,帮助家长管理自闭症儿童的食问题,解决一个影响健康和发展的常见问题. 该工具包将为家庭提供可访问的早期干预支持.
科学领域:
- 发展心理学 发展心理学
- 公共卫生 公共卫生
- 干预科学 干预科学
背景情况:
- 自闭症儿童经常经历食困难,影响他们的健康,发展和整体生活质量.
- 父母经常难以确定何时以及如何寻求这些养挑战的支持.
- 在英国,对于自闭症儿童的食问题,现有的支持服务往往不足或无法获得.
研究的目的:
- 开发一个在线工具包的蓝图,旨在帮助家长和照顾者管理自闭症儿童遇到的食问题.
- 为应对这些挑战的家庭提供量身定制,可访问和可扩展的早期干预资源.
主要方法:
- 该项目遵循医学研究理事会关于开发复杂干预措施的指导,利用三个工作包:现实审查,现实评估,包括与自闭症患者,家长和专业人员的采访,以及工具包蓝图的共同设计.
- 现实主义理论和行为变化理论为方法论提供了信息.
- 参与式研究方法包括自闭症患者,家长和专业人士,有一个公众和患者参与咨询小组,确保相关性和可访问性.
主要成果:
- 该研究将基于文献审查和利益相关者采访,产生基于程序理论.
- 在线工具包的候选组件将通过将行为变化理论应用于精细的程序理论来确定.
- 该工具包的详细文本概要或蓝图将与专家,家长和专业人士的投入共同设计.
结论:
- 这个项目为一个原型工具包奠定了基础,以支持自闭症儿童父母的食问题.
- 开发的蓝图将有助于随后创建和完善有效的,基于证据的干预措施.
- 改善自闭症儿童食问题的早期干预有可能显著改善健康结果和生活质量.
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