关于采用隐私保护记录链接为公共卫生行动的建议框架
Aditi Pathak1, Laina Serrer, Meera Bhalla
1Author Affiliations: American Institutes for Research (Dr Pathak, Dr Zapata, Mss Serrer and Bhalla, and Dr Baier), Arlington, Virginia; National Center for Chronic Disease Prevention and Health Promotion (Dr King), National Center for Immunization and Respiratory Diseases (Dr Srinivasan), National Center for Injury Prevention and Control (Dr David-Ferdon), Office of Public Health Data, Surveillance, and Technology (Drs Luxenberg, and Gundlapalli), Centers for Disease Control and Prevention, Atlanta, Georgia; and National Center for Science and Engineering Statistics, National Science Foundation (Ms Mirel), Alexandria, Virginia.
一个新的框架指导公共卫生采用保护隐私的记录链接 (PPRL). 它包括组织和项目层面的考虑,以及帮助实施研究和监督的检查清单.
科学领域:
- 公共卫生信息学 公共卫生信息学
- 数据链接技术数据链接技术
- 健康数据 隐私数据 隐私数据
背景情况:
- 公共卫生研究和监测越来越依赖于链接的数据集.
- 隐私保护记录链接 (PPRL) 提供了一个安全数据集成的解决方案.
- 需要一个结构化的方法来指导PPRL在公共卫生中的采用.
研究的目的:
- 为采用保护隐私的记录链接 (PPRL) 提出一个框架.
- 为了指导公共卫生应用程序在实施PPRL的数据链接.
主要方法:
- 与主题专家 (中小企业) 进行了12次采访.
- 使用诱导方法编码的采访数据.
- 与中小企业举行了合作会议,以定义PPRL项目生命周期并制定实施检查表.
主要成果:
- 制定了一个双层框架:组织和项目/计划.
- 确定了关键考虑因素,包括治理,解决方案选择,纵向需求,供应商锁定,成本,用例特点,链接质量,数据隐私,安全性和架构兼容性.
- 为公共卫生从业人员创建了PPRL实施检查清单.
结论:
- 拟议的框架可以指导公共卫生机构采用和实施PPRL.
- 该框架和检查清单有助于专家评估PPRL的适当性,并为研究和监督计划实施.
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