结性脊柱炎患者的经验和看法:定性研究的系统审查和元综合
Yu Li1, Dongchi Ma1, Lili Yang1
1School of Nursing, Zhejiang Chinese Medical University, Hangzhou, Zhejiang Province, China.
PloS one
|October 17, 2024
概括
化脊柱炎患者在诊断,治疗和社会角色方面面临着挑战. 加强支持和个性化管理对于改善他们的生活质量至关重要.
科学领域:
- 类风湿病学 类风湿病学
- 质量健康研究 质量健康研究
- 患者体验 患者体验
背景情况:
- 化脊柱炎 (AS) 是一种慢性炎症疾病,影响生活质量.
- 了解患者的经验对于制定有效的管理策略至关重要.
研究的目的:
- 系统地评估有关结性脊髓炎患者经验的定性研究.
- 为AS患者制定个性化的疾病管理计划提供信息.
主要方法:
- 在多个数据库 (PubMed,科学网,Embase等) 进行全面的文献搜索. 在2024年3月之前.
- 使用乔安娜·布里格斯研究所 (JBI) 标准进行质量评估.
- 结果合成的元聚合方法.
主要成果:
- 包括11项定性研究.
- 四个主要主题出现了:诊断/治疗困难,症状影响,社会角色不适应和支持不足.
- 十个子主题进一步详细介绍了这些经验.
结论:
- 医疗保健提供者应该利用在线平台进行患者教育和支持.
- 建议专注于心理健康,自我管理和个性化干预.
- 社会支持对于改善AS患者的福祉和生活质量至关重要.
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