相关实验视频
Updated: Jun 10, 2025

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Method of Studying Palatal Fusion using Static Organ Culture
Published on: September 19, 2015
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爱尔兰青少年出生时患有口唇裂的患者报告结果
K Nolan1, Y MacAuley2, S Byrne3
1Department of Plastic & Reconstructive Surgery, Children's Health Ireland at Crumlin, Ireland.
概括
患有唇裂和/或 palatal裂的青少年的患者报告结果 (PROs) 在年轻男性和那些隔离的 palatal裂患者中显示出更高的满意度. 这些数据有助于为更好的患者护理量身定制服务.
科学领域:
- 面外科手术 面外科手术
- 患者报告的结果
- 先天性疾病:先天性疾病.
背景情况:
- 裂口和/或口影响爱尔兰1:650名活产儿,呈现终身挑战.
- 这种情况会影响呼吸道,食,听力,言语,牙和面部发育.
- 虽然手术结果受到审计,但患者报告的结果 (PRO) 越来越重要.
研究的目的:
- 检查在都柏林裂中心 (DCC) 治疗的青少年的患者报告结果 (PRO).
主要方法:
- 使用了一种经过验证的患者报告结果测量 (PROM),即CLEFT-Q.
- 156名青少年患者 (平均年龄13.5岁) 预期完成了CLEFT-Q.
- 结果根据裂类型进行分析,并与验证数据进行比较.
主要成果:
- 男性在所有领域都报告了更高的满意度.
- 较年轻的患者报告说,他们对外观和生活质量的满意度更高.
- 隔离的口腔裂患者在学校,社会和心理功能方面表现出最高的满意度.
结论:
- 现在,PRO数据指导了DCC的患者和家庭咨询.
- 这些信息有助于针对特定患者需求的服务开发.
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