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联合儿科风湿病/皮肤病诊所:好处和挑战

Jessica L Crockett¹, Susan Kim², Emily von Scheven²

¹School of Medicine, University of California, San Francisco, San Francisco, California, USA.

Pediatric dermatology

|October 18, 2024

概括

结合类风湿病/皮肤病诊所 (RDCs) 改善了患有复杂疾病的儿童的诊断和护理. 尽管支持较差,但这些诊所受到患者和临床医生的高度重视.

科学领域:

儿科风湿病学儿科风湿病学
儿科皮肤科儿科皮肤科
综合护理模式综合护理模式

背景情况:

结合类风湿病/皮肤病诊所 (RDCs) 提供高效的专家协调和综合护理.
关于儿科RDC的物流,结果,好处和挑战的文献有限.

研究的目的:

描述儿科RDC的患者队列.
调查参与RDC的儿科皮肤科医生,了解他们的经验和看法.

主要方法:

在UCSF儿科RDC对71名新患者的回顾性审查 (2017年9月至2023年9月).
调查分发给17名北美皮肤科医生,代表2024年独特的儿科RDC.

主要成果:

女性患者占69%.
区域诊断中心的访问在41%的新病例和96%的确诊病例中确立或证实了诊断.
常见的诊断包括线性形态 (33%),狼 (23%) 和牛皮 (13%).
23%接受了新的全身治疗;8%接受了皮肤活检,28%接受了成像.
所有的RDC都包括实习生,但只有59%的RDC有行政支持.
100%的人认为RDC对患者护理有价值;88%的人认为它们是有价值的时间使用.

结论:

儿科RDC促进共识诊断,简化评估和复杂儿科病例的管理.
区域开发中心提供了教育机会,并受到患者和临床医生的重视,尽管临床和行政支持通常很差.

关键词:

自身免疫性疾病是一种自身免疫性疾病.联合诊所联合诊所综合护理是一项综合护理.这是一个跨学科的跨学科课程.线性形态形态是线性形态形态.这是一种狼,狼.这是一个多学科的多学科教育.儿科皮肤病学儿科皮肤病学儿科风湿病学儿童风湿病学

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