在种族多样化的脏捐赠者中经历了意想不到的结果:一种定性试点研究
Miriam Vélez-Bermúdez1, Heidi Rishel Brakey2, Larissa Myaskovsky1,2,3
1Center for Healthcare Equity in Kidney Disease, University of New Mexico Health Sciences Center, Albuquerque, New Mexico, USA.
Clinical transplantation
|October 18, 2024
概括
活着的脏捐赠者经常面临疲劳和并发症等意想不到的结果,但仍然充满热情. 对于未来的捐赠者来说,建议提高捐赠体验的透明度.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學.
- 移植手术 移植手术
- 质量健康研究 质量健康研究
背景情况:
- 活体脏捐赠通常是安全的,但潜在的捐赠者需要全面的信息.
- 缺乏对捐赠后体验的理解可能会导致意想不到的挑战.
- 定性见解对于平衡对活体脏捐献的看法至关重要.
研究的目的:
- 探索脏捐赠的短期和长期风险和益处.
- 从种族多样化的捐赠者群体中收集深入的定性描述.
- 为捐赠后的经验提供一个平衡的视角.
主要方法:
- 使用DIPEx方法进行个人叙事深度采访.
- 与曾经活着的脏捐赠者通过Zoom进行的采访 (2020年9月至2021年3月).
- 专注于生活经验的定性数据收集.
主要成果:
- 14名捐赠者 (10名女性;不同种族) 完成了采访.
- 大多数捐赠者经历了意想不到的结果:手术并发症,长期疲劳,情绪困扰,高血压和痛风.
- 挑战包括误解实验室值和难以获得生命保险;然而,捐赠者报告没有遗憾.
结论:
- 尽管出现了负面结果,但对活体脏捐献的热情仍然很高.
- 建议提高对捐赠后经验的透明度.
- 活着的捐赠体验将为在线教育模块提供信息.
相关概念视频
Kidney Transplant I: Introduction
1
A kidney transplant is a surgical approach that involves replacing a non-functioning kidney with a healthy one from a donor. This procedure is often a treatment option for end-stage renal disease (ESRD) patients. The method requires careful recipient selection, including evaluating various medical and psychosocial factors. These criteria vary between transplant centers but generally include assessments of the patient's overall health, adherence to medical recommendations, and lifestyle...
1
Kidney Transplant II: Surgical Procedure
1
Preoperative ManagementThe primary goals of preoperative management in kidney transplantation are to optimize the patient’s metabolic state and prepare them for surgery through diet adjustments, necessary dialysis, and tailored medical treatment. This phase also involves comprehensive infection screening and patient education about the surgical procedure and postoperative care to improve outcomes and adherence.Medical ManagementA comprehensive evaluation is required for both the living...
1
Kidney Transplant III: Nursing Management
2
Postoperative Nursing Management for Kidney Transplant PatientsPostoperative nursing management care includes monitoring the surgical site, encouraging early movement, and promoting lung health through breathing exercises. Nurses also administer prescribed medications like H2-blockers, such as famotidine, or proton pump inhibitors, like omeprazole, to help prevent gastrointestinal ulcers and bleeding. Fungal infections in the mouth and bladder can result from immunosuppressive and antibiotic...
2
Bone Marrow Sampling and Transplants
304
Bone marrow transplant is a potential cure for several diseases, including cancer and specific genetic disorders. Notably, this procedure is applicable for patients suffering from aplastic anemia, certain types of leukemia, severe combined immunodeficiency disease (SCID), Hodgkin's disease, non-Hodgkin's lymphoma, multiple myeloma, thalassemia, sickle-cell disease, and certain cancers.
The transplant begins with high doses of chemotherapy and radiation treatment, which aim to destroy...
The transplant begins with high doses of chemotherapy and radiation treatment, which aim to destroy...
304
Tissue Transplantation
341
Tissue transplantation is a significant medical procedure involving the transfer of cells, tissues, or organs from a donor to a recipient, with the primary aim of restoring lost functions. This procedure is crucial in treating a broad spectrum of diseases, including kidney diseases, liver failure, heart disease, and certain types of cancers.
The Biology of Tissue Transplantation
The biology of tissue transplantation hinges on the Major Histocompatibility Complex (MHC) molecules. These molecules...
The Biology of Tissue Transplantation
The biology of tissue transplantation hinges on the Major Histocompatibility Complex (MHC) molecules. These molecules...
341
Surveys
14.7K
Often, psychologists develop surveys as a means of gathering data. Surveys are lists of questions to be answered by research participants, and can be delivered as paper-and-pencil questionnaires, administered electronically, or conducted verbally. Generally, the survey itself can be completed in a short time, and the ease of administering a survey makes it easy to collect data from a large number of people.
14.7K


