风湿性关节炎患者的耻辱和治疗坚持,生活质量之间的相关性:一种混合方法研究
Youdi Chen1, Qian Yu2, Guomin Sun3
1Faculty of Nursing, Bengbu Medical University, Longzihu, Anhui, China.
Journal of evaluation in clinical practice
|October 18, 2024
概括
耻辱感显著影响类风湿性关节炎 (RA) 患者,对治疗的坚持和生活质量产生负面影响. 通过干预来解决耻辱是管理RA进展和改善患者结果的关键.
科学领域:
- 类风湿病学 类风湿病学
- 社会科学 社会科学 社会科学
- 健康心理学 心理健康心理学
背景情况:
- 类风湿性关节炎 (RA) 是一种慢性自身免疫性疾病,影响身体功能和生活质量.
- 与慢性疾病相关的耻辱感会加剧患者的痛苦,并阻碍有效的管理.
- 了解RA患者的耻辱的具体表现和影响对于有针对性的干预至关重要.
研究的目的:
- 评估风湿性关节炎 (RA) 患者所经历的耻辱的患病率和特征.
- 检查RA患者的耻辱,治疗坚持和生活质量之间的关系.
- 从患者的角度确定与耻辱相关的关键主题.
主要方法:
- 采用混合方法方法,将定量调查与定性深度访谈相结合.
- 266名RA患者完成了一项调查,评估了耻辱感,治疗坚持以及与健康有关的生活质量.
- 20名RA患者参加了半结构面试,以详细探讨他们与耻辱的经历.
主要成果:
- 据 RA 患者报告,总体耻辱的中等水平 (平均得分为 47.8 ± 10.8).
- 在总耻辱评分和治疗坚持 (p < 0.05) 和生活质量 (p < 0.05) 之间发现了显著的负相关性.
- 定性分析揭示了包括自我否定,歧视,缺乏疾病知识,高成本和增加生活负担在内的主题.
结论:
- 耻辱症对有效的类风湿性关节炎管理构成重大障碍,对治疗坚持和患者的生活质量产生负面影响.
- 医疗保健提供者应该实施全面的计划,以减轻RA患者的耻辱感.
- 针对耻辱的干预措施对于控制疾病进展,减少残疾和提高RA患者的整体福祉至关重要.
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