与医疗复杂性的儿童进行手术决策相关的护理人员价值观和偏好
Jody L Lin1, Tsivya Devereaux2, Tamara D Simon3
1Division of Pediatric Hospital Medicine, Department of Pediatrics, University of Utah, Salt Lake City, UT.
The Journal of pediatrics
|October 20, 2024
概括
医疗复杂性的儿童的照顾者需要决策支持工具. 了解他们的价值观和偏好,特别是关于儿科神经肌肉脊柱病治疗的不确定性,对于开发有效的工具至关重要.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 医疗决策 - - 医疗决策
- 定性研究是指质量研究.
背景情况:
- 患有医疗复杂性的儿童经常面临复杂的治疗决策.
- 儿科神经肌肉脊柱病手术对护理人员提出了重大挑战.
- 现有的决策支持工具可能无法充分满足CMC护理人员的独特需求.
研究的目的:
- 确定医疗复杂性的儿童的护理者价值观和偏好.
- 为儿童神经肌肉脊柱病的手术治疗决策提供决策支持工具的开发提供信息.
- 了解护理人员对治疗不确定性的看法.
主要方法:
- 使用半结构面试对神经肌肉结症儿童的照顾者进行定性研究.
- 两家儿童医院的英语和西班牙语采访.
- 有根据的理论分析,以综合照顾者的价值观和偏好.
主要成果:
- 41名护理人员参与了调查,64%的护理人员选择为孩子进行手术.
- 关键价值包括减少疼痛,优化生活质量和管理并发症.
- 报告说,关于治疗结果和疾病进展的重大不确定性.
结论:
- 医疗保健中心的照顾者需要包括价值观澄清在内的决策支持.
- 需要新的方法来有效地向护理人员传达治疗的不确定性.
- 决策支持工具应该解决CMC护理人员的多方面的价值观和偏好.
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