面对鼻病:母亲的担忧,挑战和应对他们的孩子
Ethan D Paliwoda1, Alejandro Torres2, Elma Dema3
1Albany Medical College, Albany, NY, USA.
概括
护理人员主要使用社交媒体提供情感支持,并分享与关节突症相关的医疗信息. 患者和男性的观点在在线讨论中不足.
科学领域:
- 社交媒体分析
- 定性研究是指质量研究.
- 患者创建的内容
背景情况:
- 突症给患者和家人带来了独特的挑战.
- 在线平台作为共享体验和支持的空间.
- 了解患者和护理人员在线话语对于有针对性的支持至关重要.
研究的目的:
- 描述受骨突症影响的个体在线共享的经验.
- 确定社交媒体内容中的关键主题和趋势,这些内容与骨突有关.
- 探索患者和护理人员如何利用社交媒体获得支持和信息.
主要方法:
- 从TikTok和Instagram (2017-2024) 中对700个与骨突相关的帖子进行了定性主题分析.
- 分析的重点是患者和护理人员的帖子.
- 横截面研究设计. 截面研究设计.
主要成果:
- 大多数职位 (96%) 是由护理人员,主要是女性 (97%).
- 四个主要主题出现了:情感和心理支持 (47%),医疗信息和治疗 (27%),家庭和社会动力学 (15%),和意识,教育和宣传 (12%).
- 患者和男性的观点代表性不足.
结论:
- 社交媒体是护理人员,特别是寻求情感支持,健康信息和社区的母亲的重要工具.
- 平台有助于分享经验,提高人们对骨突症的认识.
- 医生可以利用社交媒体获得洞察力,信息传播和患者参与.
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