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解决荷兰多发性硬化症患者的膀和肠道挑战:症状流行率和患者转诊途径
Willemijn Faber1, Alexander B Stillebroer2
1Department of rehabilitation, Rehabilitation Centre Heliomare, Wijk aan Zee, North Holland The Netherlands.
PloS one
|October 21, 2024
概括
多发性硬化症 (MS) 患者中膀和肠道问题非常普遍,严重影响日常生活. 许多患者和医疗保健专业人员缺乏意识,导致对这些常见的多发性硬化症症状的治疗延迟和不理想.
科学领域:
- 神经学 神经学
- 胃肠病学 胃肠病学
- 泌尿器科 泌尿器科 泌尿器科 泌尿器科
背景情况:
- 多发性硬化症 (MS) 中的神经损伤经常导致膀和肠道功能障碍.
- 这些问题显著影响患者的生活质量和日常活动.
研究的目的:
- 确定MS患者膀和肠道问题的患病率.
- 在MS护理中调查这些疾病的患者转诊途径.
主要方法:
- 在2021年秋季进行了一项全国性的横截面研究.
- 一项由63个问题组成的调查通过社交媒体和直接邮件分发给MS患者.
- 收集和分析了1,082个验证的答案.
主要成果:
- 91%的受访者报告了膀问题,73%的人报告了肠道问题.
- 42% (膀) 和47% (肠道) 的人不知道MS的联系.
- 45% (膀) 和28% (肠道) 经历了日常生活中断;许多人寻求但没有找到令人满意的解决方案.
结论:
- 膀和肠道症状在荷兰MS患者中非常普遍和具有影响力.
- 患者和医疗保健专业人员缺乏意识导致不足的认可和不理想的治疗.
- 护理途径的碎片化和缺乏专业专业知识导致了治疗挑战.
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