自闭症儿童的父母所经历的情绪和困难:一种定性研究
Gülzade Uysal1, Atiye Karakul2, Duygu Sönmez Düzkaya2
1Nursing Department, Sakarya University of Applied Sciences, Faculty of Health Sciences, Sakarya, Turkey.
Journal of evaluation in clinical practice
|October 23, 2024
概括
自闭症儿童的父母面临着重大挑战,包括情绪上的痛苦,社会隔离和经济上的压力. 了解这些困难对于为自闭症家庭提供有效的支持系统至关重要.
科学领域:
- 儿童心理学 儿童心理学
- 发育障碍 发育障碍 发展障碍
- 家庭研究 家庭研究
背景情况:
- 养育患有自闭症谱系障碍的孩子面临着独特的挑战.
- 以前的研究表明,需要更深入地了解父母的经历.
研究的目的:
- 识别和分析父母养育自闭症儿童所遇到的具体困难.
- 提供关于自闭症父母挑战的多面性质的见解.
主要方法:
- 定性研究方法.
- 从24名自闭症儿童的父母那里收集的数据.
- 使用MAXQDA软件和Colaizzi的七阶段方法进行分析.
主要成果:
- 五个主要主题出现了:父母的情绪,适应家庭生活,社会关系困难,有限的娱乐机会和经济困难.
- 父母报告了显著的情绪反应,包括悲伤,否认和抑郁.
- 财务困难被医疗和教育需求的运输成本所加剧.
结论:
- 父母普遍会经历一系列的情绪,从最初的震惊和否认到最终接受孩子的诊断.
- 困难扩展到家庭动态,社会互动,休活动和经济稳定.
- 调查结果强调需要全面的支持服务,以满足自闭症儿童家庭的整体需求.
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