评估对接受血液透析的患者在线资源的可理解性和可操作性
Emi Furukawa1, Tsuyoshi Okuhara1,2, Hiroko Okada1,2
1University hospital Medical Information Network (UMIN) Center, The University of Tokyo Hospital, Tokyo, Japan.
概括
血液透析 (HD) 患者的网页往往缺乏清晰度和实际指导. 提高可理解性和可操作性对于患有末期脏疾病的患者来说至关重要,以有效地管理他们的健康.
科学领域:
- 卫生识字 卫生识字
- 患者教育 患者教育
- 数字健康传播数字健康传播
背景情况:
- 血液透析 (HD) 是对末期病的重要治疗方法.
- 患者对在线健康信息的理解和利用对于治疗坚持至关重要.
- 现有的在线资源可能无法充分满足患者对清晰度和可用性的需求.
研究的目的:
- 量化评估血液透析患者在线信息的可理解性和可操作性.
- 确定患者教育材料需要改进的具体领域.
主要方法:
- 在2022年6月,在谷歌和雅虎日本进行了系统的搜索,使用与末期脏病和HD相关的顶级关键词.
- 用日本版本的患者教育材料评估工具来评估194个已识别的网页.
- 可理解性和可操作性被评为0-100%的范围,适度值为70%.
主要成果:
- 总体理解率为66.7%,可操作性为33.3%.
- 只有38.7%的材料被认为是可以理解的,而16.5%是可以采取行动的.
- 改进的关键领域包括使用简单的语言,简洁的摘要和有效的视觉辅助工具.
结论:
- 目前用于血液透析患者的网页往往无法提供易于理解或可操作的信息.
- 对于这些患者群体的在线健康资源的设计和内容,需要大幅度改进.
- 通过更好地设计的数字工具提高健康素养对于患者赋权和自我管理至关重要.
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