患者,护理伙伴和医生在多发性骨髓瘤治疗决策中的声音
Lisa Dwyer Orr1, Dee Lin1, Bingcao Wu1
1Janssen Scientific Affairs LLC, Titusville, NJ, USA.
Patient preference and adherence
|October 24, 2024
概括
患者,护理伙伴和医生在多发性骨髓瘤 (MM) 治疗决策中重视不同的因素. 了解这些不同的偏好,包括生活质量和副作用,是优化患者护理和结果的关键.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者报告的结果
背景情况:
- 多发性骨髓瘤 (MM) 的治疗决策是复杂的,涉及多个利益相关者.
- 患者,护理伙伴和医生可能会优先考虑治疗的不同方面.
研究的目的:
- 识别和比较MM患者,他们的护理伙伴和治疗医生最重视的治疗属性.
- 了解不同角色如何影响MM治疗因子的估值.
主要方法:
- 在MM的成年患者,MM护理伙伴和MM治疗医生中进行了一项横截面在线调查.
- 受访者从2022年9月至12月期间的美国在线小组中招募.
- 调查项目由文献审查,定性访谈和专家/患者的意见提供信息.
主要成果:
- 响应的持续时间,副作用和生活质量 (QoL) 是所有组的前三大治疗属性.
- 患者优先考虑了QOL和护理需求,而护理伙伴则更愿意接受家庭负担以获得更有效的治疗.
- 患者比护理伙伴更容易接受严重的副作用.
结论:
- 患者,护理伙伴和医生如何评估MM治疗属性存在显著差异.
- 承认和解决这些不同的观点对于以患者为中心的护理和改善多发性骨髓瘤的结果至关重要.
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