"所以让我们继续这样吗? "共享决策和使用结果信息在多发性硬化症患者的日常护理管理中
Olga C Damman1, Laxsini Murugesu1, Vincent de Groot2
1Department of Public and Occupational Health and Amsterdam Public Health Research Institute, Quality of Care, Amsterdam UMC location Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
概括
在多发性硬化症 (MS) 护理中,共享决策 (SDM) 和结果信息的使用是有限的. 患者更喜欢被告知选择,尽管经常同意临床医生的建议.
科学领域:
- 神经学 神经学
- 医疗保健服务研究 医疗服务研究
- 以患者为中心的护理
背景情况:
- 研究了在学术门诊诊所进行多发性硬化症 (MS) 管理的常规护理.
- 研究了MS护理中共享决策 (SDM) 和结果信息类型的应用.
研究的目的:
- 评估SDM和多样化的结果信息在MS患者日常管理中的整合.
- 了解患者和医疗保健专业人员 (HCP) 对决策过程的看法.
主要方法:
- 一个定性研究,涉及23个临床遭遇观察.
- 对17名患者和7名医疗保健专业人员进行了采访.
- 对观察和采访的录音记录进行了定性主题分析.
主要成果:
- 除了个别临床结果 (如MRI,实验室) 外的结果信息很少被讨论.
- 医疗保健人员经常在发现问题后隐式地提出选择,而不是明确的SDM.
- 患者希望获得关于选择,益处和危害的信息,尽管他们经常推迟医疗保健工作者建议,并更喜欢治疗稳定性.
结论:
- 在常规的MS护理中,SDM和综合结果信息的使用并不明显,主要是由于未经声明的选择.
- 关于患者经验和优先事项的讨论确实发生了.
- 建议包括加强医疗保健人员在SDM方面的培训,改善患者信息资源.
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