具有挑战性的案例:自闭症谱系障碍的家庭导航
Ingrid Y Lin1, Aubyn C Stahmer2, Emily Feinberg3
1Division of Developmental-Behavioral Pediatrics, Department of Pediatrics, School of Medicine, Stanford University, Stanford, CA.
Journal of developmental and behavioral pediatrics : JDBP
|October 24, 2024
概括
一名28个月大的男孩被诊断患有自闭症谱系障碍 (ASD),由于沟通障碍和未解决的需求,他面临着获得早期干预服务的挑战. 进一步的支持对于这个说西班牙语的家庭来说至关重要,以导航他们的孩子的服务.
科学领域:
- 发育行为儿科 发育行为儿科
- 自闭症谱系障碍 (ASD) 诊断 诊断
- 早期干预服务 早期干预服务
背景情况:
- 一个28个月大的西班牙语男孩提出了发展问题,包括语言回归和重复行为,导致对自闭症的积极查.
- 家庭史表明父母的移民和农场工作,可能会影响获得一致的发展支持.
- 早期干预计划的先前尝试没有成功,突出了沟通和服务参与的潜在障碍.
研究的目的:
- 详细介绍自闭症谱系障碍的诊断过程和在来自不同语言背景的幼儿中遇到的挑战.
- 探索面临社会经济和沟通挑战的家庭获得早期干预和治疗服务的障碍.
- 概述儿童发育过程中的一个关键时刻,强调需要量身定制的支持和跟进.
主要方法:
- 在发育行为儿科 (DBP) 诊所进行临床评估.
- 使用"自闭症在幼儿中修改后检查清单,修订后跟踪 (M-CHAT-R/F) "进行查.
- 进行发育测试,行为观察,并审查家长的担忧.
主要成果:
- 发育测试显示了极低的接受和表达语言技能,具有显著的认知和适应性分散.
- 行为观察证实了社会沟通的差异,重复的行为,和过渡的痛苦,与自闭症谱系障碍一致.
- 尽管诊断和建议进行早期干预,应用行为分析,语音治疗,听力学和基因检测,但在六个月内没有任何服务被启动.
结论:
- 这起案件凸显了自闭症谱系障碍儿童获得关键早期干预服务的重大延迟,加剧了语言和潜在的社会经济因素.
- 对来自不同背景的家庭来说,对医疗保健和早期干预系统的有效导航至关重要.
- 强调持续跟进和文化敏感支持的关键需求,以确保儿童获得及时和适当的发展服务.
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