数据作为科学货币:研究人员在撒哈拉以南非洲分享健康数据时遇到的挑战
Jyothi Chabilall1, Qunita Brown2, Nezerith Cengiz2
1Business Management, Faculty of Medicine and Health Sciences, Stellenbosch University, Cape Town, South Africa.
PLOS digital health
|October 24, 2024
概括
撒哈拉以南非洲的卫生研究人员面临着数据共享的重大挑战,原因是学术压力和治理不足. 这种不适妨碍了分享,尽管人们认识到它对全球健康的科学益处.
科学领域:
- 卫生研究 卫生研究 卫生研究
- 数据科学数据科学数据科学
- 撒哈拉以南非洲地区.
背景情况:
- 创新的数据共享加速了医疗保健和健康研究.
- 研究人员面临的是为了共同利益而进行数据共享和个人学术进步之间的冲突.
- 有限研究探讨了卫生研究人员对撒哈拉以南非洲 (SSA) 数据共享挑战的观点.
研究的目的:
- 探索撒哈拉以南非洲地区卫生研究人员在数据密集型研究中面临的数据共享挑战.
- 了解卫生研究人员对数据共享障碍和促进者的观点.
主要方法:
- 定性横截面基线研究.
- 与来自16个南非国家和地区的16名健康研究人员进行了深入采访 (2022年7月 - 2023年4月).
- 使用有目的和雪球采样技术,使用ATLAS.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.ti.
主要成果:
- 出现了五个反复出现的主题:个人研究人员的关注,结构性问题,学术认可,道德挑战和法律缺口.
- 有关数据共享存在显著的不适,导致不愿意尽管承认科学利益.
- 不适源于当地和国际卫生研究合作的指导方针和治理不足.
结论:
- 通过强有力的准则,立法和数据共享协议来加强数据治理至关重要.
- 解决伦理和法律问题,提高数据质量,价值和真实性至关重要.
- 通过改善治理和资源,可以促进卫生研究人员和数据捐赠者之间的信任.
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