探索使用家庭肠道营养的成年人和他们的照顾者的生活经验:一个元聚合的定性系统性审查
Rebekah Sandhu1, Treeva Elliott1, Whitney Hussain1
1Dietitian Services Department, Fraser Health Authority, Surrey, British Columbia, Canada.
当有有效的应对机制和支持系统时,家庭肠道营养 (HEN) 对成年人和他们的照顾者来说可能是一个积极的体验. 没有它们,负面经历更为常见.
科学领域:
- 医疗营养治疗 治疗 治疗
- 患者体验研究 研究研究
- 质量综合 质量综合
背景情况:
- 家庭肠道营养 (HEN) 对那些无法通过口服满足营养需求的人来说至关重要.
- 现有的审查集中在特定的HEN亚群,如癌症患者.
- 需要全面了解各种成人HEN用户和护理人员的经验.
研究的目的:
- 综合成年HEN用户及其护理人员在各种疾病中的经验.
- 在HEN旅程中确定共同的主题,挑战和促进者.
主要方法:
- 在Medline,PsychINFO,EmBase和CINAHL数据库中进行系统的文献搜索 (2024年1月).
- 包括与成人HEN参与者进行的定性研究.
- 使用Johanna Briggs Institute (JBI) 的元聚合方法进行数据提取和主题整理.
主要成果:
- 包括40项涉及732名参与者的研究.
- 确定的主题包括积极的经验,消极的经验,以及促进者/应对机制.
- 虽然负面经历更频繁,但那些有支持和应对策略的人发现HEN是值得的.
结论:
- 在开始HEN之前,了解可用的支持和应对机制至关重要.
- 医疗保健提供者应主动协助HEN用户和护理人员获得支持,以减轻负面体验.
- 加强支持系统可以提高HEN的整体感知价值.
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