一项关于自闭症成年人的生活质量和衰老经历的定性访谈研究
Hannah E Viner1, Nicola Yuill2, Andreia P Costa3
1University of Luxembourg, Esch-sur-Alzette, Luxembourg. hannah.viner@uni.lu.
Communications psychology
|October 25, 2024
概括
老年自闭症成年人的生活质量是独一无二的,受到诊断,社会联系,自主,生活管理和脆弱性的影响. 了解这些因素对于支持自闭症患者随着年龄的增长至关重要.
科学领域:
- 老年学是一门学科.
- 自闭症谱系障碍研究研究
- 生活质量研究 生命质量研究
背景情况:
- 生活质量 (QoL) 是自闭症社区的一个研究重点.
- 对于老年自闭症成年人的QoL和衰老经历的理解有限.
- 现有的 QoL 措施可能不能充分反映自闭症个体的经验.
研究的目的:
- 探索40岁以上的自闭症成年人如何定义和体验QOL.
- 在老年自闭症成年人中确定影响 QoL 的因素.
- 了解自闭症和老化在 QoL 上的交叉点.
主要方法:
- 使用半结构面试进行的定性研究.
- 参与者:来自英国和卢森堡的16名40岁以上的自闭症成年人.
- 分析:反思性的专题分析.
主要成果:
- 五个主要主题出现了:诊断是关键的,与他人联系,在空间和时间上的自主权",生命的文书工作"和脆弱性.
- 确定了 QoL 的自闭症特异性方面.
- 突出了衰老和自闭症的交集对 QoL 的影响.
结论:
- 自闭症特异性因素在老年人中显著塑造了 QoL.
- 衰老和自闭症以独特的方式相互作用,影响整体福祉.
- 调查结果为老年自闭症人口提供了量身定制的支持.
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