为研究人员和患者代表提供培训和同行指导,以支持持续的双向学习
Casper G Schoemaker1,2, Inge Schalkers3, Brigit A de Jong4
1INVOLV, P.O. Box 13040, 3507 LA, Utrecht, The Netherlands. c.schoemaker@involv.nl.
Research involvement and engagement
|October 26, 2024
概括
这项研究为研究人员和患者代表制定了一项长期的并排培训计划,以促进整个研究项目的持续合作和相互学习. 该计划成功地减少了权力不平衡,并加强了患者参与研究的机会.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与研究.
背景情况:
- 患者参与研究往往仅限于初始项目阶段.
- 在整个项目中保持有意义的患者-研究人员合作仍然具有挑战性.
- 现有的培训计划通常是一次性会议,分别为研究人员和患者提供.
研究的目的:
- 共同创建和评估一个长期的,并排培训和研究员-病人代表对的支持计划.
- 促进相互学习和持续的合作,从项目开始到完成.
- 解决持续,综合患者参与研究的需要.
主要方法:
- 开发了一个为期2-3年的团体培训和同行支持计划,适用于4-5个研究员-患者代表对.
- 节目包括30个小时的6-8个会议,重点是沟通,角色和期望.
- 该计划的结构从培训演变为同行团队辅导,适应参与者的需求.
主要成果:
- 该计划在5个不同的小组中实施,在健康主题和研究类型上有所不同.
- 并排培训减少了权力不平衡,提高了讨论中的平等地位.
- 参与者报告说,患者参与方面的知识和经验增加,使合作适应共同需求.
结论:
- 共同创建了一个可行的长期并排计划,用于研究人员和患者的对.
- 该计划有效地刺激了相互学习和在研究中持续的合作.
- 这个倡议满足了研究人员,患者和资助者之间对综合患者参与的关键需求.
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