障碍有效的过渡到成年服务的患者与希尔施普朗格病的障碍
Joseph R Davidson1,2, Joe Curry3
1UCL Great Ormond Street Institute of Child Health, London WC1N 1EH, UK.
Children (Basel, Switzerland)
|October 26, 2024
概括
许多患有赫施普朗格病的患者现在活到成年,需要持续的医疗保健. 这篇文章讨论了将这些患者转移到成人服务的挑战,并提出了改善护理的解决方案.
科学领域:
- 儿科手术 儿科手术
- 胃肠病学 胃肠病学
- 医疗保健的转型 医疗保健的转型
背景情况:
- 赫施普朗格病 (HSCR) 患者越来越多地活到成年.
- 很大一部分成年HSCR患者需要持续医疗护理.
- 从儿科到成人医疗保健的有效过渡对这一群体至关重要.
研究的目的:
- 为了确定未满足的需求在成人护理的希尔施普朗格病患者.
- 探索阻碍从照顾到成人服务过渡的障碍.
- 为过渡期护理提出潜在的解决方案和最佳实践.
主要方法:
- 关于成人希尔施普朗格病的文献综述.
- 分析医疗保健转型中的挑战.
- 探索现有的过渡期护理模式.
主要成果:
- 越来越多的成年人患有 Hirschsprung 病的人群需要专门的成人护理.
- 过渡的障碍包括缺乏成人提供者的专业知识和分散的护理.
- 模式示例为改善过渡期护理提供了途径.
结论:
- 解决未满足的成年赫施普朗格病患者的需求需要专门的过渡战略.
- 克服障碍是确保无和有效终身护理的关键.
- 在过渡期护理中实施最佳实践将改善患者的治疗结果.
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