在儿科人群中进行以患者为导向的研究:叙述性审查
Alan P Cooper1,2, Linda Nguyen3,4,5, Oluwapolola Irelewuyi1,2,6
1Department of Paediatrics, The Hospital for Sick Children, Toronto, ON M5G 1X8, Canada.
Children (Basel, Switzerland)
|October 26, 2024
概括
面向患者的研究 (POR) 涉及与患者合作,以改善儿科健康研究. 本综述为开展POR提供了指导,强调了其可行性和克服共同挑战的好处.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 儿科研究 儿科研究
- 基于社区的参与式研究
背景情况:
- 面向患者的研究 (POR) 在成人和儿科健康研究中越来越多地被采用.
- 这种模式将患者整合为整个研究过程中的合作伙伴.
- 在儿科患者群体中进行POR提出了独特的考虑.
研究的目的:
- 为儿童群体实施以患者为导向的研究 (POR) 提供指导.
- 在整个研究周期中概述患者参与的策略.
- 为了应对挑战,并证明POR在儿科健康中的好处.
主要方法:
- 对儿科健康领域现有的以患者为导向的研究进行文献综述.
- 在研究项目之前和期间描述参与策略.
- 讨论POR的测量和评估方法.
主要成果:
- 以患者为导向的研究在儿科环境中是可行的和有益的.
- 准备和特定的工具可以克服POR中常见的挑战.
- 文献中的例子说明了POR的成功实施.
结论:
- 以患者为导向的研究是儿科健康研究的一个有价值的方法.
- 有效的参与策略对于成功实施POR至关重要.
- POR可以为儿童带来更相关,更有影响力的研究成果.
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