父母对PANS和PANDAS各种治疗方法的看法
Megan M Dailey1, Gianna M Colombo1, Caitlin M Pinciotti1
1Menninger Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine, Houston, TX, USA.
父母更喜欢炎症/感染缓解和生活方式的改变PANS/PANDAS,评价精神病治疗最不合适. 这突出了理解父母对儿科自身免疫神经精神疾病治疗的态度的差距.
科学领域:
- 儿科神经学 儿科神经学
- 免疫学 免疫学 免疫学
- 精神病学是一个精神病学.
背景情况:
- 儿科自身免疫神经精神疾病 (PANDAS) 涉及在A组链球菌感染后突然出现的强迫症.
- 儿科急性神经精神综合征 (PANS) 是由感染或炎症引发的突然发作的强迫症/限制饮食.
- 目前的PANS/PANDAS治疗缺乏黄金标准,父母的期望影响了结果.
研究的目的:
- 调查家长对各种PANS/PANDAS治疗的态度.
- 了解父母对PANS/PANDAS治疗适宜性的看法.
主要方法:
- 一项在线调查分发给208名父母的孩子自我报告的PANS/PANDAS.
- 治疗方法被分类 (心理治疗,精神病/精神药物,炎症/感染缓解,补充剂,生活方式,手术).
- 父母对每个治疗类别和具体干预措施的适当性进行了评价.
主要成果:
- 父母认为减轻炎症/感染和改变生活方式是最合适的.
- 精神病学/精神药物干预被评为最不合适的.
- 抗生素,NSAIDs,IVIG和家庭咨询被评为非常适当;DBS,TMS,抗抑郁药和ERP被评为不良.
结论:
- 父母的偏好倾向于生物和生活方式干预,而不是PANS/PANDAS的精神病治疗.
- 研究结果表明,需要更好地向家长传播研究成果,并进一步研究家长的经验.
- 解决家长的态度对于改善PANS/PANDAS治疗参与和治疗结果至关重要.
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