为患有尿道狭窄性疾病的患者开发患者报告的结果指标
Devin Boehm1, Kyle Nolla2, Aurash Naser-Tavakolian1
1Department of Urology, Northwestern University, Feinberg School of Medicine, Chicago, IL.
Urology
|October 26, 2024
概括
开发了一种新的患者报告结果指标 (PROM),以评估尿道狭窄病 (USD) 和其外科治疗的影响. 该工具捕捉症状,生活质量和治疗成功感知,以更好地评估患者的治疗结果.
科学领域:
- 泌尿器科 泌尿器科 泌尿器科 泌尿器科
- 患者报告的结果
- 医疗保健服务研究 医疗服务研究
背景情况:
- 尿道狭窄症 (USD) 显著影响患者的身体,精神和社会福祉.
- 量化患者在USD管理中的经验对于结果评估至关重要.
研究的目的:
- 开发和验证一种新的患者报告结果测量方法 (PROM),用于尿管狭窄性疾病 (USD).
- 从患者的角度捕捉美元及其外科治疗的多方面的影响.
主要方法:
- 定性方法包括半结构化的概念诱导采访,对接受机器人尿管重建的患者进行采访.
- 根据采访主题,现有PROM和专家临床意见生成项目.
- 通过临床医生反和与患者进行认知面试以确保相关性和理解度的代改进.
主要成果:
- 开发了一个13项仪器,评估症状 (8项),生活质量 (4项) 和患者感知到的治疗成功 (1项).
- 对14个概念诱导访谈的定性分析 信息项目生成.
- 两轮认知采访10名患者证实了PROM的可理解性和相关性.
结论:
- 通过以患者为中心的定性方法和专家投入,成功开发了强大的PROM.
- 这种新的PROM提供了一种经过验证的工具,用于评估在接受手术治疗的尿路收缩疾病患者的结果.
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