轻度认知障碍患者的家庭护理人员面临的挑战:一种定性纵向研究
Li-Min Kuo1, Ching-Lin Wang2, Huei-Ling Huang3
1Department of Gerontological Health Care, College of Nursing, National Taipei University of Nursing and Health Sciences, Taipei, Taiwan.
International journal of mental health nursing
|October 28, 2024
概括
照顾有轻度认知障碍的亲属对家庭护理人员来说是一个挑战. 在两年内,护理人员经历了由于认知,行为和身体变化而增加的压力,以及管理并发病症和不断升级的负担.
科学领域:
- 老年学是一门学科.
- 神经科学是一个神经科学.
- 心理学 心理学 心理学
背景情况:
- 轻度认知障碍 (MCI) 患者的家庭照顾者在理解和应对不断演变的行为和功能变化方面面临挑战.
- 随着时间的推移,护理人员适应亲属状况逐渐变化的经验仍然未得到充分研究.
研究的目的:
- 探索家庭护理人员在两年内对患有MCI的亲属的记忆,行为和身体功能变化做出反应的经验.
- 识别家庭护理人员在他们的亲属中轻度认知障碍的进展过程中所面临的挑战和不断变化的需求.
主要方法:
- 定性研究采用了来自台湾神经病诊所的11名MCI患者的家庭护理人员的有目的抽样.
- 数据收集涉及面对面的半结构面试,在转诊后的六个月内进行,每六个月进行三次后续面试.
- 对41个转录的音频录制的采访进行了内容分析,以确定与护理人员经验和挑战相关的主题.
主要成果:
- 患有MCI的亲属的纵向变化显著增加了照顾者的挑战.
- 关键的挑战包括管理亲属的认知衰退 (情绪波动,不稳定的行为,减少身体能力),适应并发病及其治疗,增加照顾者负担 (压力,不确定性,焦虑,角色压力).
- 随着时间的推移,护理需求加剧了,特别是对于那些在研究期间亲属进展到痴呆症的人来说.
结论:
- 对患有MCI的个体进行护理的轨迹是复杂而苛刻的,其特点是两年来不断升级的挑战.
- 调查结果强调,精神卫生保健提供者发展有针对性的支持服务至关重要,以减轻护理人员角色压力并增强应对机制.
- 了解家庭护理人员不断变化的需求对于改善轻度认知障碍患者及其家属的护理和支持质量至关重要.
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