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数据专业人员对数据隐私,共享和同意在医疗保健和研究中的态度
Katya Kaplow1, Max Downey1, Darren Stewart1
1Department of Surgery, NYU Grossman School of Medicine, New York, NY, USA.
Digital health
|October 28, 2024
概括
卫生数据专业人员信任机构,但希望对数据使用有控制权. 大多数人认为,个人应该对健康数据访问和隐私拥有完全的控制权和具体的同意.
科学领域:
- 医疗信息学 医疗信息学
- 数据 隐私 数据 隐私 数据
- 生物伦理学生物伦理学
背景情况:
- 卫生数据系统中的个人了解数据风险.
- 对健康数据同意,共享和隐私的看法至关重要.
研究的目的:
- 评估对健康数据同意,共享和隐私的看法.
- 了解处理健康数据的专业人士的观点.
主要方法:
- 在线调查43项分发给美国个人 (18+) 用健康数据工作的项目 (2023年3月至4月).
- 进行了描述性统计和推理分析 (皮尔森的千平方,顺序逻辑回归).
主要成果:
- 61.7%的人信任各种部门的健康数据;学术医学研究 (86.5%) 和医疗保健办公室 (89.9%) 的信任度高于行业 (68.2%).
- 绝大多数 (97.3%) 的人认为个人应该完全控制自己的健康数据.
- 92.0%的人认为每个数据使用都需要具体的同意,93.7%的人支持更高的医疗记录隐私标准.
结论:
- 卫生数据专业人员通常信任机构,但希望个人对数据访问和使用进行控制.
- 研究结果表明,需要通过定性研究进一步探索,以了解这些细微的观点.
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