基于共识的指导方针,用于传达多发性硬化症的错误诊断,以减少心理痛苦
Angela Lesley Baufeldt1, Nikos Evangelou2, Nima Moghaddam1
1School of Psychology, University of Lincoln, Lincoln, UK.
Brain and behavior
|October 28, 2024
概括
专家共识指南是为了帮助临床医生沟通多发性硬化症 (MS) 误诊而制定的. 这些指导方针旨在减少患者的痛苦和临床医生在这个困难的对话期间的焦虑.
科学领域:
- 神经学 神经学
- 卫生沟通健康沟通
- 患者体验 患者体验
背景情况:
- 多发性硬化症 (MS) 误诊是一个公认的临床挑战.
- 错误的诊断可能会导致患者严重的痛苦和临床医生的焦虑.
- 需要明确的沟通策略来减轻负面影响.
研究的目的:
- 制定基于专家共识的指导方针,用于传达MS误诊.
- 为了减少患者的心理痛苦和临床医生的潜在诉讼.
主要方法:
- 修改后的Delphi方法,包括一个系统的文献综述.
- 由18名专家组成的小组,包括临床医生,多发性硬化症患者和健康传播专家.
- 通过75%的协议达成共识,随后是外部审稿人的反.
主要成果:
- 在45个"非常重要的"项目上达成共识,综合成27条指导方针.
- 十个项目专门针对MS错误诊断的沟通.
- 为临床实践制定了七项总体建议.
结论:
- 开发的指南为神经病学家提供了实用的建议.
- 建议侧重于在MS错误诊断披露期间的有效沟通.
- 旨在支持临床医生管理敏感的患者互动.
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