患有头癌和低骨肌肉质量的患者如何经历基于西斯的化疗放射治疗? 一个定性研究研究
Anouk W M A Schaeffers1, Maartje A van Beers1, Lot A Devriese2
1Department of Head and Neck Surgical Oncology, University Medical Center Utrecht, Utrecht University, G05.122, P.O. Box 85.500, 3508 GA, Utrecht, The Netherlands.
概括
患有头癌和肌肉质量低的患者发现西斯的化学放射治疗令人痛苦. 他们使用支持网络和策略来应对,强调了在这个改变生活的事件中需要量身定制的咨询.
科学领域:
- 在瘤学瘤学.
- 患者体验研究 研究研究
- 质量健康研究 质量健康研究
背景情况:
- 头部和部状细胞癌 (HNSCC) 患者面临重大治疗挑战.
- 基斯普拉丁基化学放射疗法 (CRT) 是有效但有毒的,特别是对于骨肌量 (SMM) 低的患者.
- 患有HNSCC和低SMM的患者面临与治疗相关的困难.
研究的目的:
- 探索HNSCC患者低SMM接受基于的CRT的经验.
- 了解治疗期间和之后面临的身体,情感和心理挑战.
主要方法:
- 采用了一种描述性的定性研究设计.
- 在CRT治疗后三个月,与七名患者进行了半结构面试.
- 使用主题分析来解释患者的体验.
主要成果:
- 前CRT的主题包括信息,期望,心理社会因素和支持系统.
- 在CRT期间,患者经历了毒性,心理社会影响,并依赖支持网络.
- 在CRT后,主题涉及反思,心理社会调整,来自网络和医疗保健工作者的支持,以及持续的毒性.
结论:
- 基于西斯普拉丁的CRT对于大多数HNSCC患者来说是一个令人痛苦的,改变生活的事件.
- 患者使用各种各样的应对策略和支持网络.
- 建议为支持性护理提供量身定制的咨询和按需咨询.
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