为残疾或迟到的学龄儿童制定最佳儿童主导的目标设定实践:国际德尔菲共识研究
Aisling K Ryan1, Laura Miller2, Tanya A Rose1
1School of Health and Rehabilitation Sciences, The University of Queensland, St Lucia, Queensland, Australia.
Disability and rehabilitation
|October 29, 2024
概括
专家们一致认为,残疾儿童可以积极参与目标设定和评估. 医疗保健专业人员应该个性化方法,并赋予儿童权力.
科学领域:
- 儿科联合健康 儿科联合健康
- 关于残疾人的研究.
- 儿童发展 儿童发展
背景情况:
- 儿童主导的目标设定对于残疾或发育迟缓的儿童至关重要.
- 目标设定和评估的最佳实践需要专家的共识.
- 目前的做法可能不完全支持儿童积极参与.
研究的目的:
- 为了在儿童主导的目标设定和评估的最佳实践上达成专家共识.
- 确定这些实践的规划,流程和支持的关键因素.
- 为相关卫生专业人员提供有效的儿童参与策略的信息.
主要方法:
- 一个三轮的eDelphi共识研究.
- 涉及来自不同学科和国家的60名盟友卫生专业人员.
- 使用7点的利克特度量表,对323个独特的项目评价一致.
主要成果:
- 159个项目 (50%) 达到了专家的共识.
- 关于过程步骤和支持儿童参与策略的强有力的协议.
- 建议包括定制流程,为特定能力提供资源,并赋予儿童观点权力.
结论:
- 专家证实,残疾儿童可以积极参与目标设定和评估.
- 未来的研究应该优先发展儿童主导的目标设定工具和技术.
- 个性化,赋权的方法对于有效的儿童参与至关重要.
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