一个系统的文献审查,以识别葡萄牙的患者登记册
Hugo Pedrosa1, Fábio Pereira1, Magda Carrilho1
1Real-World Analytics Solutions, IQVIA Solutions Portugal, Porto Salvo, Portugal.
Portuguese journal of public health
|October 29, 2024
概括
这项研究确定了葡萄牙的108个患者登记册,其中76个是国内的,32个是国际的. 大多数国家注册表都属于医学协会和卫生当局,主要在心脏病学和瘤学领域,这凸显了对集中数据存储库的需求.
科学领域:
- 医疗信息学 医疗信息学
- 公共卫生研究 公共卫生研究
- 医疗保健中的数据管理
背景情况:
- 患者登记册对于现实数据收集至关重要,对于分析临床实践和改善医疗保健至关重要.
- 葡萄牙目前的患者登记册的现状和使用情况仍然未被充分探索,尽管对RWD的需求日益增加.
研究的目的:
- 确定并提供葡萄牙现有的患者登记册的全面概述.
- 了解葡萄牙医疗保健系统中通过患者登记册收集RWD的现状.
主要方法:
- 根据PRISMA©指南进行了一项系统文献审查 (SLR).
- 在Embase®,MEDLINE©和Cochrane Ovid®数据库中进行了搜索,并通过谷歌®搜索引擎审查进行了补充.
- 纳入标准侧重于1955年至2021年的患者登记册和数据库,不包括随机对照试验和横向观察性研究.
主要成果:
- 总共有108个独特的患者登记册被确定,包括76个国家 (70%) 和32个国际 (30%) 的登记册.
- 大多数国家注册表 (88%) 是由医学协会和卫生当局管理的,主要位于医院 (82%).
- 这些国家注册表涵盖18个不同的医疗专业,重点关注心脏病学和瘤学.
结论:
- 这项研究提供了葡萄牙患者登记册的首个全面概述,这对于提高RWD的实用性至关重要.
- 建议为葡萄牙的所有患者登记建立一个集中,易于访问的存储库,以改善数据传播.
- 76个国家注册表的进一步深入描述是必要的,以充分理解它们的潜力和对医疗保健研究的贡献.
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