护理和选择架构:亲属在支持决策过程中为智障成年人提供支持
Sadeta Demic1, Rosemarie van den Breemer2, Halvor Hanisch1
1VID Specialized University, Norway.
Journal of intellectual disabilities : JOID
|October 30, 2024
概括
亲属 亲属 亲属 亲属
科学领域:
- 关于残疾人的研究.
- 人权法 人权法 人权法
- 社会护理研究 社会护理研究
背景情况:
- 联合国残疾人权利公约 (CRPD) 确立了辅助决策作为人权.
- 在市政住房中,智障成年人往往需要在决策过程中得到支持.
- 家庭成员在支持智障人士的决策方面发挥着至关重要的作用.
研究的目的:
- 探索亲属在智力障碍成年人支持决策方面的经验和困境.
- 确定影响支持决策过程的关键因素.
- 在这种背景下,检查选择架构和护理理论的交叉点.
主要方法:
- 使用深度采访进行定性研究设计.
- 与智力障碍成年人的亲属进行的采访.
- 分析的重点是家庭护理人员的生活经验和观点.
主要成果:
- 支持决策包括促进选择,根据选择架构原则进行选择.
- 有效的辅助决策需要有意的关注,专注于个人的偏好.
- 亲属考虑了即时的支持和决定的长期后果.
- 在辅助决策中,护理人员的支持对于应对系统性挑战至关重要.
结论:
- 选择架构和护理理论为理解支持决策提供了有价值的框架.
- 有意的照顾和以人为中心的方法对于有效的支持至关重要.
- 解决系统性因素至关重要,以加强智障人士的支持决策.
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