以人为中心的基于Web的移动健康系统 (症状) 报告COVID-19接种疫苗的个体的症状:对系统,用户和症状的观察研究
Emelie Gustafson Hedov1, Fredrik Nyberg2, Stefan Gustafsson1
1Department of Medical Sciences, Uppsala University, Uppsala, Sweden.
JMIR formative research
|October 30, 2024
概括
一个用于自我报告症状的数字系统有效地捕获了广泛的COVID-19疫苗副作用,包括那些通常不会向医疗保健提供者报告的副作用. 这种以人为中心的方法强调了个人经验对于理解疫苗安全的重要性.
科学领域:
- 公共卫生 公共卫生
- 数字健康数字健康
- 疫苗安全监督 疫苗安全监督
背景情况:
- 全方位的COVID-19疫苗和感染副作用,尤其是温和的副作用,仍然在很大程度上是未知的.
- 以人为中心的症状自我报告和患者报告的结果对于全面的健康监测至关重要.
- 在沟通和数据利用方面,个别患者的需求和偏好是有效护理的关键考虑因素.
研究的目的:
- 描述Symptoms系统用于以人为中心的症状自我报告和与健康有关的生活质量的利用.
- 使用来自症状系统的数据调查COVID-19疫苗副作用.
- 提交RECOVAC研究中新接种疫苗的个人数据.
主要方法:
- 在瑞典Västra Götaland地区的150个接种地点通过海报招募新接种疫苗的人.
- 利用一种新的数字系统Symptoms,让参与者跟踪症状,功能和生活质量.
- 采用基于证据的患者报告的结果指标和简短的数值评分表,允许预先指定和自定义的症状.
主要成果:
- 731个人在2021年7月至2022年9月期间创建了帐户并同意共享数据.
- 77.0%的参与者报告至少有一个症状,注射部位疼痛 (86.3%),疲劳 (32.1%) 和头痛 (30.0%) 是最常见的.
- 报告了143种独特的症状,其中79.7%是自我定义的,突出显示了系统在捕捉各种经验方面的灵活性.
结论:
- 症状系统成功捕获了关于COVID-19疫苗接种后症状的广泛,纵向数据,与现有观察结果保持一致.
- 该系统在收集自我报告的症状数据方面展示了易于使用和有效性.
- 以人为中心和自我指导的设计对于捕捉用户体验到的症状的全部负担至关重要.
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