对CTSA附属电子健康记录数据网络进行国家未满足需求评估:客户发现方法
Nallely Mora1,2, Madeline Mehall1,2, Lindsay A Lennox3
1Parkinson School of Health Sciences and Public Health, Loyola University Chicago, Chicago, IL, USA.
电子健康记录 (EHR) 数据网络必须通过改善团队科学,能力建设和数据治理来满足临床和翻译科学奖 (CTSA) 枢纽对现实世界数据 (RWD) 和现实世界证据 (RWE) 的需求,以获得更好的研究成果.
科学领域:
- 医疗信息学 医疗信息学
- 翻译科学 翻译科学
- 数据科学数据科学数据科学
背景情况:
- 电子健康记录 (EHR) 数据网络已经推进了数据共享.
- 在满足临床和翻译科学奖 (CTSA) 枢纽对真实世界数据 (RWD) 和真实世界证据 (RWE) 的具体需求方面仍然存在差距.
研究的目的:
- 在CTSA中心内对EHR数据网络进行全面的需求评估.
- 确定利益相关者的需求和价值主张,以改善电子健康记录数据网络的实用性.
主要方法:
- 一种混合方法的方法,结合了景观上下文分析和客户发现.
- 通过调查,54次采访和一个重点小组收集数据,其中包括32个CTSA机构.
主要成果:
- CTSA的需求因资源而异;团队科学至关重要.
- 数据质量建立信任;能力建设的需求因职业阶段而异.
- 研究人员报告了关于EHR数据网络利用的未满足需求.
结论:
- 电子健康数据网络必须促进团队科学,增强员工能力,并确保数据治理信任.
- 解决这些差距支持学习健康系统,并与NIH NCATS数据科学战略计划保持一致.
- 通过验证的RWE专注于质量改进和高价值护理是必不可少的.
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