探索和优先考虑的内容,包括在药物自我管理工具包中,用于脊髓损伤/功能障碍的人:一个概念映射方法
Lauren Cadel1,2, Rasha El-Kotob1, Sander L Hitzig3,4,5
1Leslie Dan Faculty of Pharmacy, University of Toronto, Toronto, ON, Canada.
PloS one
|October 31, 2024
概括
脊髓损伤/功能障碍 (SCI/D) 的成年人需要更好的工具来自我管理药物. 一个新的工具包应侧重于安全,沟通和改善对这一群体的护理的实际策略.
科学领域:
- 康复医学 康复医学 康复医学
- 医疗保健服务研究 医疗服务研究
- 患者自我管理
背景情况:
- 脊髓损伤/功能障碍 (SCI/D) 的成年人经历了对二次疾病多种药物管理的重大挑战.
- 护理碎片化和需要加强自我管理支持是SCI/D护理中的关键问题.
- 之前的研究表明,SCI/D患者强烈希望改善药物自我管理资源.
研究的目的:
- 为适合SCI/D.的成年人量身定制的药物自我管理工具包确定基本内容.
- 探索这种资源的最佳交付方法,考虑各种利益相关者的观点.
- 收集SCI/D患者,护理人员,医疗保健提供者和社区组织的意见.
主要方法:
- 一个概念映射研究被用来系统地收集和组织参与者的想法.
- 参与者进行头脑风暴,排序,评分和映射活动,以定义工具包内容.
- 数据分析涉及创建视觉集群地图,以表示对关键主题的共识.
主要成果:
- 八个核心内容集群出现了:信息共享,医疗保健提供者互动,同行支持,获取药物/信息,非处方/供应信息,安全/生活方式,一般药物细节和实用策略.
- 安全和生活方式的考虑被确定为工具包中最重要和最现实的组成部分.
- 这项研究涉及44名代表不同利益相关者群体的参与者.
结论:
- 对于患有SCI/D的成年人来说,有必要改进药物自我管理工具.
- 识别的内容集群为开发有效的支持资源提供了一个全面的框架.
- 在药物自我管理的各个方面加强支持对这个人群有很大的潜力.
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