患者和公众的参与和参与:我们需要一个"伦理"吗?
Sophie Suri1,2, Samantha L Harrison3, Alex Bevin-Nicholls4,5
1School of Health and Life Sciences, Teesside University, Middlesbrough, TS1 3BA, UK. s.suri@tees.ac.uk.
Research involvement and engagement
|November 1, 2024
概括
患者和公众参与和参与 (PPIE) 需要安全实践的伦理. 虽然英国的PPIE没有正式的道德批准,但指导对于减轻风险和确保道德行为至关重要.
科学领域:
- 公共卫生研究 公共卫生研究
- 研究伦理学研究伦理学
- 患者参与 患者参与
背景情况:
- 患者和公众参与和参与 (PPIE) 提高了研究影响.
- 目前英国公众参与标准缺乏直接的道德行为指导.
- 英国的PPIE活动不需要正式的道德认可.
研究的目的:
- 倡导将伦理指导纳入英国公众参与标准.
- 探索PPIE中的伦理考虑和潜在风险.
- 为开展PPIE提出一个"道德".
主要方法:
- 对PPIE互动相关的伦理原则的分析.
- 讨论潜在的风险,包括情绪和身体伤害,保密和边缘化.
- 在PPIE中考虑支持动态和关系建设.
主要成果:
- PPIE涉及敏感的话题,需要仔细的伦理考虑.
- 具体的伦理挑战包括管理情绪风险,保密性和避免边缘化.
- 建立健康的关系是有效的PPIE的关键.
结论:
- 对PPIE的正式道德认可被认为是过度和潜在的窒息.
- PPIE应以"道德"为指导,以确保负责任的实践.
- 实施伦理指南对于减轻PPIE中的风险至关重要.
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