初级保健提供者对遗传性癌症风险评估和测试的做法,态度和信心:混合方法研究
Sarah Conner1, Tesla Theoryn2, Emerson Dusic2
1Genetic Analysis Center, Department of Biostatistics, School of Public Health, University of Washington, Seattle, WA.
概括
初级保健提供者愿意为遗传性癌症提供基因检测,但对基因特异性技能缺乏信心. 需要采取干预措施来提高对癌症风险评估和基因检测的信心和采用.
科学领域:
- 在瘤学瘤学.
- 遗传学 遗传学 是一个
- 初级医疗保健医学 一级医疗保健医学
背景情况:
- 基于人口的风险评估和基因测试对于遗传性癌症管理至关重要.
- 初级保健提供者 (PCP) 在识别有风险的个体方面发挥着关键作用.
- 了解PCP准备对于指南实施至关重要.
研究的目的:
- 评估初级保健提供者对基于人口的风险评估的准备程度.
- 评估PCP对遗传性癌症遗传检测的态度和信心.
- 确定在初级保健机构提供基因测试的障碍.
主要方法:
- 采用混合方法方法,结合调查和后续访谈.
- 60名PCP完成了有关实践,态度和信心的调查.
- 16名PCP参加了定性访谈,以深入探讨发现.
主要成果:
- 医生更喜欢直接询问,而不是标准化风险评估工具.
- 尽管认识到基因检测的重要性,但许多PCP对潜在的负面患者影响表示担忧.
- 虽然愿意提供有针对性的测试,但更少的PCP对进行基于人口的风险评估或回答基因特异性的问题充满信心.
结论:
- 由于缺乏对遗传学相关技能的信心,PCP愿意提供基因测试受到阻碍.
- 不有效的家族病史查和对后续护理的担忧可能会加剧健康差异.
- 有针对性的干预措施是必要的,以提高PCP对遗传性癌症评估和管理的信心,促进更广泛地采用基因测试.
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