患有系统性红斑狼的老年人的生活经验:患者的观点
Sarah B Lieber1, Sarah R Young2, Yvonne Shea3
1S.B. Lieber, MD, MS, L.A. Mandl, MD, MPH, Division of Rheumatology, Hospital for Special Surgery, and Department of Medicine, Weill Cornell Medicine; liebers@hss.edu.
The Journal of rheumatology
|November 1, 2024
概括
患有全身性红斑狼 (SLE) 的老年人有不同的衰老经历,受疾病进展和症状的影响. 了解这些感知可以指导成功的衰老和改善生活质量的干预措施.
科学领域:
- 类风湿病学 类风湿病学
- 老年学是指老年学的学科.
- 质量健康研究 质量健康研究
背景情况:
- 对系统性红斑狼 (SLE) 患者的衰老感知的理解有限.
- 需要有针对性的干预措施,以促进SLE的成功衰老.
- 对患有SLE的老龄化生活经验的定性见解至关重要.
研究的目的:
- 探索患有SLE的老年人老龄化的体验和本质.
- 确定SLE患者成功衰老的行为干预目标.
主要方法:
- 与65岁以上患有SLE的成年人进行半结构面试.
- 使用现象学方法进行主题分析.
- 收集社会人口统计和疾病数据.
主要成果:
- 30名参与者 (平均年龄71.3) 平均SLE持续时间为26.3年.
- 出现了四个主题:SLE/并发症,累积症状影响,疾病轨迹和自我感知.
- 老龄化经验各不相同,包括多病症和疾病进展的观点.
结论:
- 关于衰老的自我感知是多样化的,受SLE症状和疾病轨迹的影响.
- 这些发现可以为基于证据的策略提供信息,以提高SLE老年人的性和积极性.
- 更好的理解可能会导致更好的健康结果和生活质量.
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