在炎症性肠病中过渡护理的有效性;过渡成功评分的开发,验证和初始结果
Martha A C van Gaalen1, Merel van Pieterson1, Petra Waaijenberg2
1Department of Paediatric Gastroenterology, Erasmus MC-Sophia Children's Hospital, Rotterdam, The Netherlands.
开发了一种新的过渡成功评分 (TSS),以衡量患有炎性肠病 (IBD) 的青少年医疗保健过渡计划的有效性. 该TSS有助于识别需要额外支持的患者在他们转移到成人护理期间.
科学领域:
- 儿科到成人医疗保健的过渡期.
- 炎症性肠病 (IBD) 的管理.
- 患者报告的结果衡量患者报告的结果.
背景情况:
- 对于患有炎性肠病 (IBD) 的青少年,儿科到成人医疗保健过渡计划的有效性尚不清楚.
- 缺乏具有验证过渡结果措施的前性研究.
- 需要一个定量工具来评估IBD中过渡期护理的有效性.
研究的目的:
- 开发和验证一个定量转型成功分数 (TSS).
- 在多中心环境中应用TSS来评估过渡期护理的有效性.
- 在医疗保健过渡期间识别IBD患者的风险.
主要方法:
- 国际德尔菲与IBD利益相关者的研究确定了10个过渡成果项目.
- 项目被整合到一个通用问卷中,即TSS.
- 未来的,多中心研究成年提供者,年轻成年患者和护理人员9-15个月转移后的TSS得分.
主要成果:
- 荷兰7家医院的160名IBD患者完成了TSS;平均得分为25 (范围为17-27).
- TSS显示结构有效性,与知识,独立性和生活质量相关 (p<0.005).
- 较低的得分与高的疾病负担,转移期间的恶化以及某些人格特征有关.
结论:
- TSS是一个有效的定量工具,用于评估IBD的过渡性护理干预措施.
- TSS可以识别IBD患者在过渡到成人医疗保健期间面临的挑战.
- 为成功的医疗保健转型提供有针对性的支持.
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