在美国的价值评估中,根据患者经验 (而不是QALY) 衡量有效性
Maksat Jumamyradov1,2, Benjamin M Craig3
1Department of Economics, University of South Florida, Tampa, FL, USA. maksat@usf.edu.
PharmacoEconomics
|November 2, 2024
概括
这项研究引入了一个"经验"尺度来衡量与健康相关的生活质量 (HRQoL) 的收益,为患者提供以患者为中心的替代品,而不是以质量调整的生命年 (QALYs). 新方法强调了父母对儿童健康的不同观点,为未来的价值评估提供了信息.
科学领域:
- 卫生经济学 卫生经济学
- 患者为中心的研究结果研究.
- 心理测量 心理测量 心理测量
背景情况:
- 医疗保健中的价值评估通常使用质量调整的生命年 (QALYs) 来总结健康收益.
- QALY面临的批评是对弱势群体的潜在歧视.
- 总结与健康相关的生活质量 (HRQoL) 影响对于价值评估至关重要.
研究的目的:
- 提出并说明QALYs的替代方法来总结HRQoL收益.
- 使用反映利益相关者的观点的"经验"规模.
- 为了检查美国父母对儿童健康问题的偏好.
主要方法:
- 在kaizen任务中使用离散选择实验 (DCE).
- 使用EQ-5D-Y-3L仪器来描述健康状况.
- 收集了来自18岁以下儿童的父母 (N=179),母亲 (N=99) 和父亲 (N=80) 的数据.
主要成果:
- 证明了母亲和父亲对儿童健康的看法有所不同.
- 与父亲相比,母亲更重视孩子的感受.
- 以患者为中心的方法是可行的,简短的调查和最小的受访者.
结论:
- 倡导使用患者体验量表来总结未来价值评估中的HRQoL收益.
- 这种以患者为中心的方法可以更好地告知医疗保健决策.
- 经验尺度为传统的QALY测量提供了一个有价值的替代方案.
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