报告患者和公众参与技术评估和评估报告:快速范围审查
Eugenie Evelynne Johnson1,2, Cyril Onwuelazu Uteh3,4, Emma Belilios5
1Population Health Sciences Institute, Newcastle University, Queen Victoria Road, Newcastle, NE1 4LP, UK. eugenie.johnson@newcastle.ac.uk.
患者和公众参与和参与 (PPIE) 很少被记录在证据或外部评估小组 (EAG) 报告中. 简单的语言摘要也是不常见的,这表明需要对EAG提供更明确的指导.
科学领域:
- 卫生技术评估 卫生技术评估
- 证据综合 证据综合
- 卫生政策 卫生政策
背景情况:
- 国家卫生和护理卓越研究所 (NICE) 在其医疗技术评估中使用证据或外部评估小组 (EAG) 报告.
- 患者与公众参与与参与 (PPIE) 是NICE更广泛的流程的一部分,但EAG报告中的文件尚未得到充分理解.
研究的目的:
- 确定在EAG报告中进行和记录的PPIE的范围.
- 评估在EAG报告中包含简单语言摘要的情况.
主要方法:
- 在2022年9月至2023年9月之间发布的NICE指南的快速范围审查.
- 从97个EAG报告中提取数据,重点关注PPIE文档和简单语言摘要.
- 关于PPIE行为和报告的调查结果的叙述综合.
主要成果:
- 在97份经过审查的EAG报告中,只有11份包含了简单语言的摘要.
- 在EAG报告中很少记录PPIE;一些报告引用了不进行PPIE的时间限制.
- 当报告PPIE时,参与的方法是异质的.
结论:
- 在EAG报告中对PPIE的文档有限.
- 在EAG报告中包含简单语言摘要是不常见的.
- 需要进一步的指导,使EAG能够有效地将PPIE和简单的语言摘要嵌入到他们的报告中,考虑到制作时间表.
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