患有慢性血液性恶性瘤的生活:基于PRO的症状管理前景
Maja Pedersen1, Mette Schaufuss Engedal1, Maria Torp Larsen2
1Department of Hematology, Centre for Cancer and Organ Diseases, Copenhagen University Hospital - Rigshospitalet, Blegdamsvej 9, 2100, Copenhagen, Denmark; Department of Clinical Medicine, University of Copenhagen, Blegdamsvej 3B, 2200, Copenhagen, Denmark.
概括
患有慢性血液性恶性瘤的生活存在挑战,但患者积极管理症状和日常生活. 患者报告的结果和有针对性的症状管理改善了对这些复杂疾病的随访护理.
科学领域:
- 血液学 血液学 血液学
- 在瘤学瘤学.
- 患者体验研究 研究研究
背景情况:
- 慢性血液性恶性瘤是复杂的,需要持续的症状管理.
- 患者的观点对于有效的后续护理至关重要.
研究的目的:
- 探索患有慢性血液性恶性瘤的患者经验.
- 了解患者对症状管理的看法,使用患者报告的结果 (PRO).
主要方法:
- 使用半结构化的电话采访进行的定性描述性研究.
- 采访数据的诱导分析,使用反射主题分析.
- 在19个采访中,有17名成年参与者被诊断患有慢性血液性恶性瘤.
主要成果:
- 参与者分享了有关疾病管理的细微观点.
- 关键主题包括:预防疾病主导,了解/管理疾病,以及日常生活的导航.
- 还确定了基于PRO的症状管理影响和定制的评估.
结论:
- 患有慢性血液性恶性瘤的生活需要模糊性和患者的弹性.
- 在对话和有针对性的症状管理中整合的PRO有助于日常生活的导航.
- 这些发现强调了在慢性血液性恶性瘤管理中需要加强后续护理的需求.
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