探索患者对息护理的认识 - 最佳时机和首选方法
Fulvio Bergamo Trevizan1, Carlos Eduardo Paiva1, Laura Fiacadori de Almeida1
1Institute of Education and Research, GPQual - Research Group on Palliative Care and Quality of Life - Barretos Cancer Hospital, Barretos, SPBrazil.
Palliative & supportive care
|November 5, 2024
概括
患者对息治疗 (PC) 的认识会影响讨论时间. 了解PC作为支持性护理,而不仅仅是生命的终点,鼓励更早,更明智地谈论患者偏好.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 以患者为中心的护理
背景情况:
- 息治疗 (PC) 常常被误解为仅用于生命末期 (EOL) 情况.
- 患者的意识显著影响他们参与PC讨论.
- 有限的理解可能会导致谈话延迟和不理想的护理计划.
研究的目的:
- 调查患者对息护理 (PC) 的认识.
- 确定意识如何影响讨论PC时间和方法的偏好.
- 探索患者在乳腺癌护理中的PC沟通的观点.
主要方法:
- 涉及61名被诊断患有乳腺癌的女性 (18至75岁) 的定性研究.
- 通过视频通话进行的半结构面试,重点关注PC意识和讨论偏好.
- 对面试数据进行主题分析,以确定新出现的类别.
主要成果:
- 参与者对PC的认识有所不同,有些人将其视为"生命护理",有些人则视为"危及生命的治疗".
- 讨论PC的偏好涵盖了早期,中期,晚期或永远的疾病.
- 主要讨论主题包括沟通,支持,护理环境和增强PC体验.
结论:
- 患者对PC的认识是多样化的,并挑战了EOL误解.
- 了解PC在提前支持中的作用有助于提前讨论.
- 有信息的患者参与共享决策; 对时间和方法的偏好有所不同,突出了对同情沟通和量身定制的护理策略的需要.
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